Adrián Soto lives with a genetic condition called Epidermolysis Bullosa, known as Butterfly Skin. His skin is so fragile that any friction causes blisters and wounds. Despite constant care to prevent infections, Adrián maintains hope for improvement and values the support of his family and doctors. His wish is for everything to go well in his daily life.
Technology applied to fragile skin care 🩹
In the development of dressings and bandages, materials such as hydrogels and non-adherent silicones are used to minimize trauma during removal. Research focuses on dressings with growth factors that accelerate healing and reduce pain. Textile sensors that alert to changes in skin temperature or humidity are also being explored, allowing bandages to be adjusted before new blisters form. These advances do not cure the disease, but they improve quality of life.
The irony of having butterfly skin in a sandpaper world 🦋
Adrián jokes that his skin is more delicate than a movie star's. While others worry about wrinkles, he worries about peeling his face off when blowing his nose. Even a hug can turn into a bandaging operation. But at least, when someone tells him he looks like a rose, he replies: yes, but a rose that sheds its petals just by looking at it.